A hír kategóriája: Általános
A cikk kelte: 2025.03.05.
Szerző: MGYT
SMA White Paper updates to support SMA newborn screening
In SMA, newborn screening (NBS), dramatically change the life of young babies. SMA Europe has created an Alliance involving clinicians, patients, pharmaceutical industry and DNA testing producers, to promote SMA NBS in Europe and broader.
Three years ago, SMA NBS Alliance has produced a WHITE PAPER to support stakeholders advocating for SMA newborn screening. The document sums up scientific and social answers to support the deposit of NBS application to national or regional authorities.
This new version of the White paper has been completed by the latest scientific publication, and some real life data.
You can find it here: SMA_White_Paper_NBSA_2024_EN_e91bb03c79.pdf
MGYT tagdíj összege 2022-től:
HIRDETÉSEK